“Life shrinks or expands in proportion to one’s courage.” – Anais NinDueing
December 1-7 is Crohn’s and Colitis Awareness week,
and as an IBD Warrior, it is an important to take a pause and look at REAL life with a silent, incurable illness. There is no question that is hard, but it is also what WE choose to make of it. As I often say, each of us can do hard things.
Having a chronic illnesses can understandably leave you living in fear of the next flair up… like becomes an insane game of “illness athematic”: trying to time the onslaught of debilitating symptoms with work or personal commitments (as if we have an ounce of control over any of it!), lying in wait of medication’s terrible side effects, or perhaps planning around the anticipation of potentially embarrassing social encounters. Aka: life can get very small… if you let it.
Last weekend I experienced a beautiful reminder that I can live a full life even during the hard times when I don’t feel well, or I am not sure I am up to it, I don’t look my best or can’t give it 100%. I went to a baby shower for a very best friend and then a “Friendsgiving” celebration, and while I could not partake in either of the beautiful and likely delicious cakes, I was reminded that showing up is most of the battle.
The bottom line is my disease doesn’t define me and it doesn’t need to define you. It certainly takes courage and more than a fair amount of humility and honesty to show up to life, maybe not at my best, but on life’s terms. It is a lot better than not showing up at all.