Inside the Patient Entrepreneur’s Mind
Novo Nordisk 2017
Novo Nordisk 2016
Real Lyfe with Type 1 Diabetes
Real Lyfe with Type 1 Diabetes – Tools To Thrive
The call of disease
The call you will likely hear resound when illness comes is a battle cry. Fight. Beat. Kill or be killed. I heard this cry when disease came my way and I yelled back; “War.” I fought through. I muscled on. I battled. I steeled against. Put on a brave face. Held tight. Closed my hands into ...
September 18, 2020
Why You Should Stay Optimistic During the Big Rona & How I Am Using My Sobriety To Stay Positive
“The service industry, as we know it, is changing before our very eyes. Fine dining restaurants have become quick-service takeout joints, bars are acting as bodegas, and bartenders have become online spirits instructors. It’s wild how quickly a business model can change in moments of ...
August 19, 2020
A Therapist Who Works With Chronic Illness & A Patient Too: My Transplant Journey
Hello all, I’m Lara. I am a Marriage and Family Therapist associate in California, and I work with teens, young adults, and career professionals who are working through issues surrounding anxiety, depression, self-esteem, personal development, and relationship issues. But my true call to action...
July 31, 2020
Black Lives Matter in the IBD Community, Too
In recent weeks, months and years, we have witnessed far too many hate crimes toward our Black brothers and sisters. It is not unknown to us that many Black bodies have been tested upon without fair pain medications, expected to endure tremendous suffering in the name of science. Within the ...
July 17, 2020
One of the most vital ways to practice self care is setting boundaries. For me this is also extremely difficult. I am fantastic at encouraging others and supporting them in standing up for themselves… but when it comes time for me to show up for myself in the same way, I feel like I am ...
June 19, 2020
On Wednesday 20th May 2020 the law around organ donation is changing to an opt out system in England. This basically means that all adults will now automatically be put on the list to be an organ donor. Anyone who is under 18, lacks the mental capacity to understand the law or who has...
May 27, 2020
I am so sensitive. The word Diabetic is used to describe a person that has diabetes. It’s used in print all over the place and said by lots of people but I think it’s a label that puts the disease before the person. Question: do any of these statements have a slightly more offensive ring to...
May 22, 2020
Hannah’s Story: Heart Failure and Sepsis at Age 28, ‘It’s HER heart that keeps me alive’
I was completely healthy and unaware of what it was like to live with any sort of illness. I was the annoying person who had never been prescribed antibiotics, never went to to the doctor, and never needed any days off from work. I wasn’t sick. Ever. Sitting here now, I can feel my heart ...
May 15, 2020
JT’s #RealT1DLyfe: Channeling the Difficulties of Chronic Disease into a Compassionate Career in Medicine
Living with Type 1 for the last 15 years has been simultaneously absolutely exhausting and a compelling/ continuous opportunity for personal growth and empathy-building with other patients of chronic diseases. My grandmother came to live with my family when I was seven- in very poor health. ...
January 17, 2020
My 10 Year Pancreas Transplant Anniversary: A Thank You Letter to the Family who Decided to Offer Their Daughter’s Pancreas
Jan 2, 2010 was the day of my pancreas transplant. This means I have been insulin independent again for exactly 10 years since my T1D diagnosis at age 16. No words can fully describe how this gift changed my life for the better and how much the experience taught me about the reality of living ...
January 2, 2020
#RealT1DLyfe Liz’s Story: Finding New Solutions while Caring for a Child with Type 1 Diabetes
Throughout my life diabetes had been an illness I knew little about and was fortunate enough not to have experienced myself or through loved ones. That all changed in 2011, when my oldest of four boys (David) was diagnosed with Type 1 diabetes at the age of 9. As a family we were overwhelmed, ...
October 3, 2019
#RealT1DLyfe Sara’s Story: Type 1 Diabetes, Food and Eating Disorders
Being diagnosed with Type 1 diabetes is far from the best news I’ve ever received. However, I had the best support from family, friends and healthcare professionals. Thanks to this support system from day one, I felt confident that I could maintain a positive mindset, even though I knew ...
September 30, 2019
Exercising With Chronic Illness
Exercising is a little different for anyone living with a chronic illness. Some workouts trigger flare-ups in autoimmune conditions, while others cause discomfort or pain. Sticking to a regular routine is also difficult due to the many challenges brought about by one’s condition. The goal of ...
August 28, 2020
5 Ways to Help Loved Ones Understand Chronic Pain
Sometimes one of the most difficult things about the experience of living with chronic pain can be feeling that your loved ones don’t understand. Even when loved ones mean well and want to be there for you, sometimes they simply can’t fully ‘get’ what you’re going through. This can ...
July 24, 2020
7 Things You Shouldn’t Say to Someone with IBD
IBD is a pretty hard thing to deal with. As an invisible illness, people can’t see everything going on inside my body. My body is waging a war against itself and no one can see it when they first look at me. I’ve gotten quite a few reactions when I tell someone about my ulcerative colitis. ...
May 16, 2020