Inside the Patient Entrepreneur’s Mind
Novo Nordisk 2017
Novo Nordisk 2016
Real Lyfe with Type 1 Diabetes
Real Lyfe with Type 1 Diabetes – Tools To Thrive
On Wednesday 20th May 2020 the law around organ donation is changing to an opt out system in England. This basically means that all adults will now automatically be put on the list to be an organ donor. Anyone who is under 18, lacks the mental capacity to understand the law or who has...
May 27, 2020
I am so sensitive. The word Diabetic is used to describe a person that has diabetes. It’s used in print all over the place and said by lots of people but I think it’s a label that puts the disease before the person. Question: do any of these statements have a slightly more offensive ring to...
May 22, 2020
Hannah’s Story: Heart Failure and Sepsis at Age 28, ‘It’s HER heart that keeps me alive’
I was completely healthy and unaware of what it was like to live with any sort of illness. I was the annoying person who had never been prescribed antibiotics, never went to to the doctor, and never needed any days off from work. I wasn’t sick. Ever. Sitting here now, I can feel my heart ...
May 15, 2020
JT’s #RealT1DLyfe: Channeling the Difficulties of Chronic Disease into a Compassionate Career in Medicine
Living with Type 1 for the last 15 years has been simultaneously absolutely exhausting and a compelling/ continuous opportunity for personal growth and empathy-building with other patients of chronic diseases. My grandmother came to live with my family when I was seven- in very poor health. ...
January 17, 2020
My 10 Year Pancreas Transplant Anniversary: A Thank You Letter to the Family who Decided to Offer Their Daughter’s Pancreas
Jan 2, 2010 was the day of my pancreas transplant. This means I have been insulin independent again for exactly 10 years since my T1D diagnosis at age 16. No words can fully describe how this gift changed my life for the better and how much the experience taught me about the reality of living ...
January 2, 2020
#RealT1DLyfe Liz’s Story: Finding New Solutions while Caring for a Child with Type 1 Diabetes
Throughout my life diabetes had been an illness I knew little about and was fortunate enough not to have experienced myself or through loved ones. That all changed in 2011, when my oldest of four boys (David) was diagnosed with Type 1 diabetes at the age of 9. As a family we were overwhelmed, ...
October 3, 2019
#RealT1DLyfe Sara’s Story: Type 1 Diabetes, Food and Eating Disorders
Being diagnosed with Type 1 diabetes is far from the best news I’ve ever received. However, I had the best support from family, friends and healthcare professionals. Thanks to this support system from day one, I felt confident that I could maintain a positive mindset, even though I knew ...
September 30, 2019
#RealT1DLyfe Chris’s Story: Type 1 Diabetes and Suicide
As anyone with Type 1 diabetes knows, life can be an absolute roller coaster. I would like to take you on a personal journey of mine going into the darkest of hours, but coming out in the brightest of days. Back in June of 1988, my diagnosis marked not the first or second, but fifth Type 1 ...
September 26, 2019
On Letting Go + Self Acceptance While Living With Multiple Sclerosis
The Ideal Self is an idealized version of yourself created out of what you have learned from your life experiences, the demands of society, and what you admire in your role models. My former ideal self was a smart business owner and writer who had a funny blog and a thriving consulting ...
September 6, 2019
Two and a Half Years After Chemo, I Take Inventory of My Healing
Part of my goal with ABSOT is to create a resource for the newly diagnosed to understand what lies on the road ahead. I detailed nearly every moment of my chemotherapy treatments and began writing a series of posts of how recovery was going after finishing chemo. I wrote these posts at the two ...
July 30, 2019
All Roads Lead To Wellness: How Our Different Backgrounds Led Us To Lyfebulb
Katie: In May of 2019, I joined Lyfebulb as the new Community Manager. Like many patients (including Ambassadors and Entrepreneurs) part of the Lyfebulb community, my health journey has not been easy. I struggled with chronic, neurological Lyme disease for close to a decade. The lack of awareness...
July 26, 2019
To End The Weekend In A Perfect Way
The human body is an incredible thing. Yes, it can fall apart and let you down, but it also holds amazing minds that dream up things like insulin and glucose pills that can save someone’s life and help you work around the parts of your body that can’t keep up anymore. Weight isn’t ...
June 25, 2019
7 Things You Shouldn’t Say to Someone with IBD
IBD is a pretty hard thing to deal with. As an invisible illness, people can’t see everything going on inside my body. My body is waging a war against itself and no one can see it when they first look at me. I’ve gotten quite a few reactions when I tell someone about my ulcerative colitis. ...
May 16, 2020
How to Stay Emotionally Connected During Social Isolation
In just a matter of days the world turned topsy-turvy. Last week I was in the Rhône Valley visiting vineyards for a work assignment with little access to world news. Then March 12 started a travel ban. We returned to the U.S. March 13. JFK Airport was eerily quiet at 5 p.m. when we arrived, ...
May 13, 2020
Adjusting to Loneliness During the COVID-19 Pandemic
This morning, as I woke up to a grey sky with rain hanging in the air, just waiting to fall, I felt down. I am often affected by weather, the long winters in Sweden were definitely not good for me, darkness scares me and makes me feel cold and vulnerable. In addition, today I was also facing ...
March 13, 2020