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#RealT1DLyfe Liz’s Story: Finding New Solutions while Caring for a Child with Type 1 Diabetes

Throughout my life diabetes had been an illness I knew little about and was fortunate enough not to have experienced myself or through loved ones. That all changed in 2011, when my oldest of four boys (David) was diagnosed with Type 1 diabetes at the age of 9. As a family we were overwhelmed, scared, and uneducated about the disease. As a mother, my first thought was, “What can I do to help my child?” I knew all the emotions I was feeling and could only try to imagine the thoughts that were running through my child’s young head. Immediately my stoic side came out, trying to calm this frightening situation. This was all new territory for us. The only absolute was to provide love, support, and willingness to learn everything I could about this new disease that just struck our family.

Although I do not live with the disease personally, anyone who has a loved one affected by this terrible burden knows that management is not solely the responsibility of the individual diagnosed– especially when it is a child. Inherently as a mother you worry. Add that to that the worry of a child living with a chronic disease, and suddenly the threshold is increased to a whole new level. It is with you 24 hours a day, 7 days a week, 365 days a year. Throughout the course of adjusting to our new lifestyle of insulin injections, carb counting, and blood glucose tests, I soon realized there was a missing component in the testing routine. A clean, simple solution to safely remove the excess blood left on the finger after testing sugar levels. Testing his blood anywhere from 6-10 times a day was the norm. Inevitably, David would wipe the blood either on his clothes or the inside of his case. After searching the marketplace, without success of finding a product for this unmet need, I took matters into my own hands. Being passionate about helping the diabetes community, I conceived, patented, and developed Diabetic Dabs®; booklets of absorbent sheets designed with an adhesive backing to attach to any testing kit.

My goal is to help families such as mine simplify managing diabetes and hopefully inspire others to act where shortfalls present themselves. We are all in this together; being a member of this community, our mission is to eradicate this horrible disease.

There is no stress-free way to handle the responsibilities, the highs, the lows, and emotions that come along with diabetes. However, there is a way to take control—and that is through mindset. I felt it was my responsibility as a parent to teach David that mindset determines your path in life. Mindset and perspective can turn a positive situation negative or a negative situation positive. Sometimes life throws curve balls at us—and it is in those moments that we decide how we will handle them. My goal is to empower those in the diabetes community to have a voice and make a difference!

Get real with T1D!

#RealT1DLyfe Sara’s Story: Type 1 Diabetes, Food and Eating Disorders

Being diagnosed with Type 1 diabetes is far from the best news I’ve ever received. However, I had the best support from family, friends and healthcare professionals. Thanks to this support system from day one, I felt confident that I could maintain a positive mindset, even though I knew there would be many tough periods ahead.

I have always tried to look and act “perfect” on the outside by not making a fool of myself and not creating unnecessary conflicts so that I would be accepted and respected. All of these behaviors striving for “perfection” have in some way affected the history of my T1D.

For better or worse, I have always placed significant value on my appearance. I have always strived for something that is ultimately superficial and should not really matter in the scheme of things. The combined stress of how I saw myself in the mirror and my perfect blood sugar curves eventually turned into a minor disaster.

Sara Moback thin

I learned quite quickly when I was diagnosed with T1D how food affected my blood sugar. I learned how many units of insulin I needed to maintain a relatively stable blood sugar. Together, the time and effort I dedicated towards food while I began to think more about how my body looked, as well as other important happenings in my private life, led to an awful disease – anorexia nervosa in 2016. This part of my life was probably the worst. I do not really know where my strength came from, but I eventually managed to contact a clinic that helped me, and this was the beginning of a journey to a healthier life.

I made significant progress once I started working with my body instead of against it. Before, the nutrition of what I was eating was not important to me. The most important thing at that time was for any food I consumed to not affect my blood sugar.  Now, I realize how much of an impact my T1D had on the way I considered food and my overall diet.

Receiving a diagnosis of Type 1 diabetes was traumatic because it meant I couldn’t live life as I knew it. It is difficult to change habits and ways of life – even the small, everyday habits. The additional diagnosis of anorexia made this even more difficult. After a long time spent in treatment, I had overcome most of the difficulties I encountered with my disease. I had a tough time when it came to relationships, jobs and figuring out what life meant to me.

Today, I have come a long way in my recovery. However, food is an integral part of my life and I will never be able to get rid of the thoughts of what my next meal will look like. It is a feeling that a person with T1D can never truly get rid of. Some days I feel strong because I do not struggle with my thoughts surrounding food and T1D at all. While other days, I feel the heavy burden of T1D, although I don’t always show it.

If people around us knew the extend of how hard we work to keep our bodies and souls alive, they would be shocked. Although many still do not and most likely will never fully understand, the most important thing is that you are aware of the choices that make you feel good.

Sara Moback full length

 

#RealT1DLyfe Chris’s Story: Type 1 Diabetes and Suicide

As anyone with Type 1 diabetes knows, life can be an absolute roller coaster. I would like to take you on a personal journey of mine going into the darkest of hours, but coming out in the brightest of days. Back in June of 1988, my diagnosis marked not the first or second, but fifth Type 1 diabetes diagnosis for my family. Already having lost an uncle to Type 1 in the same year, my diagnosis likely hit my family harder than I will ever know. However, growing up having two family members who passed from T1D complications weighed heavy on my mind. It didn’t help that at a young age, I heard a doctor tell my mother, “if he sees 30, feel lucky.” Growing up, T1D never completely stopped me from doing things, but often had a way of interfering. Going to play soccer as a kid, I had a coach say I couldn’t play because he didn’t want a kid dying on his field. Name calling, being told I wasn’t good enough, and the like made me angry in the moment, but ultimately sat deeper within my subconscious for twenty years into adulthood, slowly taking its toll.

Getting out on my own is where my life took a darker turn. Around 2011, I fell into a deep depression and I almost didn’t make my way out. My blood sugars were rarely where I needed them to be. It was also a constant roller coaster at work. Eat then work, forget to bolus, go high, then crash, and repeat. Although I was consistently out of range, my reasonable a1c kept my doctor at bay, all while hiding the fact I was miserable mentally. Relationships were impossible to maintain with my depression and blood sugars as they were and I began to isolate myself alone with my thoughts. The thoughts escalated from “your diabetes has destroyed your life” to “your life isn’t worth living with diabetes.” Mind you, at this point in time I already had one beautiful son. I pushed the thoughts back as much as I could for his sake. However, in doing so it enabled my thoughts to escalate even further. I was telling myself that my son would be better off without a father. I started looking up those who completed suicide and how they did it. However, even with everything I was feeling, I couldn’t leave my family with the thought that I would do so on purpose. After having crashed my blood sugars numerous times over the years to counteract extreme highs, I decided insulin was my best option.

On a Saturday morning, I woke up in tears and decided that was the day. I got up and took a fatal dose of short acting and went about my morning routine with the idea that at some point, I would have an insulin reaction and go unresponsive. For whatever reason, by an act of God, the insulin took hours to work. Later that day, when I was on line to have lunch, the last thing I remember was reaching for a plate. I woke up surrounded by EMTs in my manager’s office. Lucky for me, the guys I worked with knew me and my diabetes very well. Upon coming to, one of the EMTs said it was the first time he had a patient so low it wouldn’t read on his meter. We still don’t know how low I truly was when they got there. I finally got to the point I could stand on my own and was feeling okay physically. However, my mental state was still in shambles. Per policy at my work, I had to be sent home. I begged with my manager to let me stay. I said “I’ll just sit in the back, no one will know I‘m there.” I couldn’t go home in the state of mind I was in. But none the less, I was on my way home. The short 5 minute drive was nerve racking, tears falling, thinking “should I try again” and “I can’t be alone” and “I don’t want to live.” My best friend was sitting on the couch as I walked into my apartment and he immediately looked up at me, knowing something wasn’t right. He put his arms around me, like any brother should, and gave me a much-needed embrace–the kind of hug that lets you know someone loves you. We ended up going for a long walk where I explained what I did. He was the only one who knew what I did for years. During our walk he said, “I know the greatness you have ahead of you, you just have to be here to find it.” His words have sat with me for years.

With my two children and the Betes Bros, I have a family that pushes me to succeed. Brothers who reach out for my support as well as check on me. The men and women who have come into my life have filled my cup and continue to make life even better. If you are struggling, that is okay. As someone who almost experienced an end to my life, if I had the support then that I do now, I probably wouldn’t have gone that far. If you’re ever in a place like that in your life, talk to someone. Seeking a professional counselor doesn’t make you weak, it actually makes you stronger. Reach out to a friend who may be struggling that you haven’t talked to in a while, let them know you’re there. A simple text, note, message saying, “I’m here if you need me” can literally save a life.

#RealT1DLyfe Chris Pickering Family

Get real with T1D! #RealLyfe

For additional resources on Depression and Diabetes, check out this article from our friends at Diabetes Daily!

Inside the Patient Entrepreneur’s Mind: John Wilcox

Managing a chronic illness is challenging, whether it is your own or a loved one’s. Starting and running a business also poses unique challenges. If you struggle with a chronic illness, have started a business, or want to start a business, this blog series can help guide you. “Inside the Patient Entrepreneur’s Mind” offers key insights into chronic disease and mission-driven entrepreneurship by some of the most innovative patient entrepreneurs in the world. 

John Wilcox is the CEO & Co-Founder of Diatech Diabetic Technologies, Inc. 

As a patient entrepreneur, can you describe your personal experience with diabetes from diagnosis through your current daily management and how this experience drove you to innovate the space? 

In 2005, I was diagnosed on my ninth birthday. I figured the only way to come out on top was to make it a positive experience. Growing up, I really identified with the disease and now use it as an opportunity to empathize with others with chronic disease. I wanted to go to medical school, and still might, but this opportunity came up in college to develop intellectual property—what is SmartFusion today.

I took on the business full-time post college graduation of May 2019. My diagnosis gives me a leg up on how to develop technology to help diabetes patients. As a collective community, we can appreciate when someone with a disease can relate to us and effectively create change. My condition is something that I can share and allows me to connect to people and understand how other people are struggling—it is one of the best gifts that I could ever ask for. I don’t know what I would do with my career without this diagnosis because it has turned into a passion to help others and a lesson on how to make the best of situations.

What makes SmartFusion unique and how does it meet an unmet need of the diabetes community?

SmartFusion is a new infusion set that can more accurately tell you if insulin delivery is actually getting into your body. SmartFusion is unique in the fact that it helps patients understand if they are getting insulin.  Insulin pumps on the market right now are not really meeting the standard of being able to tell patient users if their insulin delivery is effectively working. We noticed the issue of infusion set insulin delivery failures where pumps can have issues with insulin delivery efficacy.

Personally, I have had issues going into DKA because of insulin mis-delivery.  I went to an endocrinologist in college who blamed me for poor A1C control rather than it being a technology/pump failure. I want to provide technology that can deliver alerts before hyperglycemia because it happened to me and it is very dangerous. Fixing this unmet need of pump reliability can take one thing off the list of what patients and caregivers go through regarding issues with diabetes care.

Are there any other unmet needs of the diabetes community that you think take priority in working to address? How are patient entrepreneurs well-suited to meet these needs? 

In the future, I would love to focus on software for pumps. There has been great work on hardware that is safe and effective for patients with diabetes but a real gamechanger could be software that pairs any type of CGM with any type of pump. The diabetes “hacker” community is already pairing their own CGMs with pumps but are not following standards of the industry.

Additionally, there is a lot that needs to be addressed in education, especially how to learn to effectively use diabetes technology for parents of children with the disease.

Where do you draw your inspiration and motivation from to keep forging ahead as an entrepreneur in the healthcare industry?

 My inspiration and motivation comes from talking to people who have the condition. I want to make sure the diabetes community is affected and impacted in a positive way. Stories from patients about issues with diabetes care like insulin mis-delivery keep me up at night.

Lastly, what do you do for fun to manage the stress of running a business as both a person with t1d and an entrepreneur? Do you have any similar advice on work-life-disease management balance to others out there thinking of starting a business to meet an unmet need of a chronic disease patient community?

I love to run whenever I can and I find it a very clearing activity. My goal is to John Wilcox 5k racerun the Boston marathon for the JDRF. In terms of advice for other patient entrepreneurs, we have a disease that can help connect us to other people that have the same chronic illness. However, each patient story is unique so taking the time to recognize that is important. For example, my parents helped me get appropriate care at a young age by providing insurance coverage. How dare I compare my journey to patients I meet now, who are in their twenties, who are still without coverage to get insulin. In a nutshell, know that your story is unique and craft a connection to fellow patients based on that fact.

 

 

New Workout App for People With Diabetes – And Christel is an Instructor!

Have you ever dreamt of working out with a trainer who understands diabetes, who might even live with diabetes, and who gets what it takes to get through a workout without wonky blood sugars?

Well, that trainer could be me!

Today, my 12-week fitness program “STRONGER”, that I developed for GlucoseZone, is available in the GlucoseZone app. I’d like to personally invite you to come train with me. To join me for a program that will push you to be a stronger version of yourself.

Sign up HERE and use the “STRONGER” code to get 30% off your monthly subscription

The beauty of joining GlucoseZone is that you’ll get access to not only my program but to 6 other exercise programs, as well as live workouts, all developed specifically for people living with diabetes. You can do all of the workouts in your own home or bring it to the gym.

Regardless of your fitness level, you can find qualified instructors to take you through the workouts that are right for you, and always with your diabetes in mind.

One of the reasons why I’m so excited about working with GlucoseZone is that it’s the first-ever clinically validated digital exercise therapeutic for people living with diabetes, and it’s endorsed by the American Diabetes Association.

Stronger Getting Started

Sign up HERE and use the “STRONGER” code to get 30% off the monthly retail (You’ll only pay $9.09 per month) when you sign up for the GlucoseZone app.

 

Connect with Christel on Facebook: @DiabetesStrong; Instagram: @diabetesstrong_ig.

Wearing a Diabetes Medical ID On-The-Go!

Medical ID Bracelets

Living life on-the-go can be fun and busy, however, doing so with a chronic illness requires a few extra steps and planning along the way.

 

Hi, my name is David and I have been living with Type 1 Diabetes for 10 years now. I was diagnosed at the age of 11 and let me tell you… I have been through a lot. In living with this disease, I have been able to experience so much and learn from my mistakes. In doing so, I have come to realize that as a diabetic, I am one of those who should wear a medical ID and why it’s important for all life’s experiences.

For years on end, I never wore a medical ID bracelet. I could never find a bracelet that I simply liked or wanted to wear daily. When I became a part of the Diabetic Online Community (DOC) back in 2014, I was exposed to several different people who shared the same struggle. I also saw a variety of amazing brands and companies who understand this struggle and have found ways to make ID bracelets, dog tags, necklaces, and more so much nicer and pleasing to the eye and the patient. I own several different medical ID bracelets, I think when one finds their style with Diabetes, it’s always nice to have options and create your own look, which is why owning multiple forms of emergency ID that go with different looks is a great idea!

I have mentioned several times on my Instagram, @type1livabetic, that when wearing my personalized Paracord bracelet from American Medical ID, I felt so very safe. I felt as though if anything Diabetes related could go wrong, I would be prepared. On my engraved bracelet, my name, condition, and emergency contact information were all located on a small piece of metal, attached to the Paracord bracelet. At a recent trip to Disneyland with a large group of people who also had Type 1 Diabetes that could vouch for me if there were to be an emergency, I still encountered times in which I was alone at the park (walking to and from my car, walking to meet the attendees, or simply stepping to the side to grab a snack), rest assured, I was confident with my Diabetes at the time.

So why is it so important to wear a form of medical alert jewelry for Diabetes? Well, not to get too dark or technical, however, the fact remains that we do have Type 1 Diabetes that does come with some symptoms and consequences. If our blood sugar drops significantly low, we could pass out and become unconscious or go into a coma. Same with high blood sugar, if we are severely high and go into DKA, we could in fact experience some symptoms that could limit our ability to function, which can prevent us from acting in the moment to get help. Say you were in public, alone, and you experienced one of these symptoms, if you were wearing a medical ID, someone nearby would mostly likely come to check for various hints or signs on you if something doesn’t look entirely right and search for an alert jewelry in particular sites on the body: wrists, around the neck, tattoos, etc.

In being diagnosed with any chronic disease and being told you have to take extra care of yourself can be a lot, however, allowing yourself some relief by wearing a form of ID can truly reduce a lot of the stress surrounded by various diseases. One should never leave the house without some form of ID as you never know when these emergencies could happen.

American Medical ID Healthy Packing List

The CDC includes having a form of medical identification such as alert bracelets, necklaces, or wallet cards as part of a healthy travel packing list.

I believe that some may also feel safe in knowing that they have a medical ID card in their wallet as well, for added peace of mind. One should also wear a form of ID at home, just in case. For those who live alone, I understand that it may feel as though you are not in need of wearing an ID at home as you will be alone, but that could just be the very tool that can keep you alive, say you have an emergency, it could be that neighbor walking by and seeing something isn’t right that could barge in and save your life and being able to identify you have a particular medical condition that needs attention.

We each have our own busy lives that takes up so much time and mental focus away from our health, which is why wearing medical alert jewelry can protect us as we are on the move, daily. School, work, the playground, a coffeeshop, wherever you may be, ID is necessary. No matter how old the patient is, whether a child, teen, adult, or elder, wearing a medical ID all the time can protect us from the dangers of our diseases and more.

 

Live well,

David

Real Talk with Dave: All about the Dexcom G6

Many people have been eagerly waiting for the Dexcom G6 to be announced.

Well, it just so happens that it is now FDA approved and available in June. I had the special privilege of being sent a Dexcom G6 to try out and so far, I am loving it. As promised, I wanted to share my open and honest opinion about this device, so I thought what better way to share my thoughts than through a blog.

First and foremost, I want to say how incredible this device is. I had the opportunity to see a mock-up of the device at the JDRF Type One Nation Summit and was even more excited to use this new product! The whole site and transmitter is about 33% thinner than the Dexcom G5. It is much more user friendly and has a longer wear time than the G5. You can now wear your site and get continuous glucose readings for 10 full days before you have to change out your site. You can also view your blood sugar readings on your phone, watch, and receiver that comes with the device.

One really exciting feature is that the Dexcom G6 does not require any fingerstick calibrations, which means you no longer have to prick your fingers for a manual blood sugar check anymore. You can now fully depend on this device to be even more accurate than before and allow you to have even more freedom in knowing what your blood sugars are. I have been wearing the Dexcom G6 for about a week now and have been comparing the G6 to the G5. For the first few days, I was wearing both CGMs just out of curiosity on how much more accurate the G6 really is. From what I observed, the G6 was way more accurate in comparison to the G5. I also would still check my blood sugars manually just to compare the numbers and my Dexcom was very close to the actual reading. It is intended to be 20 points above or below the actual reading, which it has been.

The device also has a new app in which there is a whole new design (similar to that of the G5, only better), and there are now more options for alerts and settings in which you can customize to your liking. Now, when having a low blood sugar, this device will alert you 20 minutes before a predicted severe low of 55 mg/dL, which I think is amazing that it can detect that for you. It truly does give peace of mind in knowing what to expect and when, giving you alerts ahead of time so you can try and prevent a bad low before it hits you.

The part of this device that I cannot praise enough is the insertion. Before, you would have to plunge a big needle into your skin and then remove it, leaving a plastic cannula deep into your skin. Now, all you do is apply to device to your skin, push a button, and within seconds, the device is in your body! When people ask me what it feels like to insert the G6, I like to describe it as “a puff of air hitting your skin, that’s it!”. The first (and only) time I inserted my CGM, I was blown away at how painless it truly was. This is going to be a huge game changer for children who have to wear a CGM as they will not feel a thing when the time comes to insert the device into their skin.

All in all, this device is great. I am obsessed at how this product works and helps me feel as a Type 1 Diabetic. It definitely allows me to live my life and not worry as much as I truly can trust what my readings are and know what is going on inside of my body. If medical technology is this good now, I am even more excited as to what the future holds for Type 1 Diabetes. With the Dexcom G6, Diabetes is not all bad.

Live well,

Dave

THE MORNING SUGAR: A Window into your Type One Management

I lie in bed with one eye open, ears still ringing from my poorly selected, overplayed alarm tone. I sit half hunched over my glucose monitor attempting the first blood-drop-to-test-strip co-ordination of the day. Its 05h30, I have fasted for 6 to 8 hours, it’s time to dive into diabetes. My test strip sucks up the drop of blood and counts down to my first glucose reading of the day:

BEEP: 4.6mmol/l (84)

OR

BEEP: 9.6mmol/l (173)

OR

BEEP 16.6mmol/l (299)

The good, the average and the ugly.
These are the 3 general ranges of readings that might greet me at the first finger prick of the day. It’s only one of the many sugar readings that lie ahead, but it is a special one to pay attention to, as your morning glucose reading can provide important insight into your diabetes control.

A fasted reading has a myriad of information which you can choose to ignore, or preferably dissect and investigate for optimum diabetes control. I believe it is vital to ask myself why? Why is my blood glucose this level and what were my preceding actions?

I will take you through my 3 ranges and my general approach to morning sugar readings and how I personally troubleshoot these readings. We each tackle diabetes differently, but hopefully the following brings some insight into your morning sugars or encourages you think critically of those interesting rise and shine numbers!

The “Gem”
My personal values are 3.8-5.6mmol/l

Oh this is a sweet, gem of a reading. It’s the real “roll out of bed on the right side” number.
Perfectly in range, it is still important to acknowledge the formula that achieved this number. We could all do with a little positive reinforcement and mindfully recognize and enjoy our diabetes successes! I always ask myself, “What did I do well?”

This sugar reading generally informs me that I have correctly dosed my long acting insulin as it did not bring me into the clutch of hypoglycaemia when fasting during my sleep. It was also sufficient to meet the cascade of morning hormones such as cortisol and hyperglycaemia it brings along with it. This sugar happily greets me when I don’t snack after dinner and I eat around 3 hours before bed-time. This plan allows for an honest, stable blood sugar reading before bed where my injected insulin has already peaked in activity, and I can expect predictable glucose readings as I sleep.

The “Meh”
My personal values are 6-9mmol/l

It’s a sugar range that is higher than I would like for a fasting blood glucose level, but it’s not remotely the end of the world. To solve this morning glucose and to prevent it creeping higher, I have my insulin dosage for my breakfast plus a dash more insulin to correct. I wait 20-30 minutes for my insulin to start working and bring my glucose down before having my breakfast. I ask my “why?” and make a mental note of how I could improve and act accordingly. If went to bed with a great blood glucose level and I woke up high, it could be various things:

1. Insufficient long-acting insulin: The Dawn phenomenon

When I have my continuous glucose monitor (CGM), the Dexcom, attached, this will be displayed as a nice steady graph with readings in glucose range for the first 2/3rds of sleep, only to find in the few hours before waking my blood glucose slowly and steadily increases. This is due to the get-up-and-go hormones that pump through your body to prepare you for waking and tackling the day. These sneaky buggers include growth hormones, cortisol, glucagon and epinephrine and they increase your insulin resistance, causing blood sugar to rise.

2. Too much insulin: The Somogyi effect

This is an interesting stress response of your body, a rebound effect of low blood glucose while sleeping. If you have too much insulin, long acting or short acting, and you experience a low while sleeping your body mounts a survival response and encourages your body to release sugar back into your blood via adrenaline and cortisol. This low may not be rapid or severe enough to cause a seizure, but sufficient to mount a physiological survival response from your body.

3. Not enough short-acting insulin

This is usually prompted by snacking before bed and eating late. My stomach is still full and has not emptied. My blood sugar will be in range when I get to sleep, but as my tummy works to digest my food, sugar trickles into my blood which I thought I had sufficiently covered by my short-acting. This especially occurs if I eat meals that have a carbohydrate, protein and high fat content. It has even been dubbed “The Pizza Effect”, where fats and protein delay the absorption of carbohydrates from a meal. The most challenging part is that you don’t know when the carbohydrates are going to be dumped into your bloodstream as sugar. It could be more than 5 hours until you feel the true effect of your meal. This could also be a reason for a really high morning blood glucose reading, the one where you would rather turn over and head back to sleep, which brings me to my final morning range, which I like to call the “Lie in Bed for a Few Minutes in Denial”.

The “Lie in Bed for a Few Minutes in Denial”
My personal values are anything double digit

The “Man, I messed up” feels. I most likely did not give myself enough insulin for the previous night’s meal, or I ate complete rubbish, did a massive carbohydrate count guestimate (that’s right folks- guess and estimate can really be combined into one perfect word), it could be “the pizza effect”, or I forgot my long acting insulin.

The alternative explanation is that I woke up with low in the middle of the night and quite passionately, dove into my bedside glucose stash, bathed myself in sugar before falling back asleep in a pile a sweet wrappers. (Yes, I have awoken with gummy sweets melted into my back and bed sheet).

If my sugars are really bad in the morning, there is usually a pretty grand, blatantly obvious reason as to why they are absolutely deranged. I find myself glancing in the mirror, at my poor, hard-done-by face to ask myself why? My expression smirks, “Oh girl, you know why. You know.”

This is where the power of the mind can transform your day. You can switch to victim. You can choose guilt and actively bring yourself down. You can choose to let a number on a plastic monitor define your day or you can free yourself from mental binds, for you are capable, you are strong and you are going to tackle the day.

My go-to plan of action:

1. Massive bottle of water with loads of top ups
2. Small simple, low sugar breakfast (I find waiting for my sugars to come down before eating leaves me more frantic and stressed)
3. More water
4. Add Insulin
Tip: Don’t give yourself 70000 units because you are panicking and desperately want your sugar to go down as quickly as possible (TRACY SANDERS I am talking to you girl). A resultant severe hypoglycaemia does not make it easier to improve the day.
5. Forgive yourself, give thanks to your body for all the other goodness it brings to you and power forward.

Transform your WHY’s into WISE, pay attention to each nugget of information your body and glucometer communicates to you. By building up an understanding of your sugars, you build a stronger relationship with your body and mind. Work closely with your support network, endocrinologist and diabetes educator to make the correct adjustments to suite your body, always ask questions and challenge your knowledge and experience of type one.

Real Talk with Dave: How to Stay Positive with T1D (Dealing with Burnout)

Have you ever felt overwhelmed with Type 1 Diabetes to the point where you just don’t want to deal with it anymore? You may feel the need to cope with your Diabetes in a different way. Many will go off their Insulin pump for a while and go back to daily syringes/ pen injections as a way to feel a sense of freedom from this disease. Unfortunately, us Diabetics cannot just “stop” Diabetes. We have to fight daily in order to stay alive. We have to take Insulin in different moments throughout the day and watch our blood sugars fluctuate from stubborn highs to difficult lows. At some point, we all go through a burnout phase where T1D just doesn’t feel bearable anymore, that is why I have put together a little guide as to how you can stand up to the burnout phase and keep on pushing through!

1/ Keep a positive mindset – This seems easier said than done, but trust me, in order to feel a positive presence on you as you go about your day, every morning, start the day fresh and new and remind yourself of all your accomplishments in life and how far you have come. Always let yourself know who you are and how brave and strong you are.

2/ Self-talk – Every day is different and some days (as we all know) can be very bad in terms of our Diabetes. There is a lot to think about throughout our day, things such as what our blood sugars may be, what supplies we need to have with us as we go somewhere during the day, and also planning for emergencies, that being said, we must make room for thoughts of reassurance. We need to talk ourselves through a bad low and tell ourselves that everything will be okay, just like it always is. We need to be our own friend who will be there when no one else is. Having positive and calm self-talk is a good way to walk you through your day and be your own hero.

3/ Do what makes you feel alive – we all face Diabetes every moment of everyday, and it can almost feel as though everything is about Diabetes. Sometimes, we may not want to think about Diabetes all the time (within reason), that is why we need to make time for other things in life that bring us true joy and help take our minds off of T1D for a bit. Doing something you love, such as going out with friends, playing a sport, or spending time with family can be the very thing that can help you cope with T1D burnout.

4/ Take a pump holiday – Though it may be difficult to keep your blood sugars in your normal range, taking a break from wearing your Insulin pump (if you wear one) can make you feel free and have one less thing constantly reminding you of your Diabetes. You can do this for a day, a week, or even a whole month, it’s really up to you. However long you need to take a break from wearing your pump, go for it, because what some don’t realize is that wearing a pump can change a person and mess with their emotions (in some cases) to the point where they feel “different”, which isn’t that case at all. Wearing a pump is a blessing and is what essentially keeps us alive each and every day.

5/ Accept your struggle – Just know that eventually, this T1D burnout phase you may be going through will go away and you will be able to get back in the game. Remember, we ALL face burnout periods in our life, but guess what? We all get over them eventually. Accepting the fact that you are stressed out, annoyed, and tired of T1D is sometimes what we need to get over that phase. Sometimes, just feeling the sadness you are going through is important and perfectly okay, because when you feel it, you work through it. It’s all one big learning process on how to cope with your thoughts and emotions. At the end of the day, we’re all humans. Diabetic or not, we go through tough life situations and working through them is just one way to grow as a person and be able to allow for empathy towards others going through difficult life situations.

6/ You are not alone – When you feel like all things are going wrong with your Diabetes, a great way to vent off and work through it all is turning to the amazing T1D community that is out there, waiting to help out in any way. Connecting with others (in person or online via social media) can help you as you will soon realize that you are not the only one dealing with burnout at the moment and that you can fight T1D together. This has been especially helpful to me as I was in a dark place for a while until I turned to the community for help and support. Now, I am at the happiest place I have ever been with my Diabetes and I realized that T1D is not all that bad.

7/ Live your life! – I get it, T1D is a horrible disease. But just remember, you are bigger, better, and stronger than T1D. Remember to smile through it all, laugh daily, and be kind to others. Make life how you want and always choose to stay actively positive, because when you are positive, whether you’re high or low, you will have motivation and strength to keep on going and T1D will just be one of those things in life we end up getting used to. When we feel like we’ve mastered T1D, we’ll be able to accept what’s on our plate at the moment.

I truly hope these tips and tricks on how to cope with T1D burnout helped you out if you are feeling this at the moment. It’s okay to be frustrated at times, but be sure to never stay in that phase forever. Life is too short to stay in a bad place with your Diabetes.

Live well,

Dave

Real Talk with Dave: Trusting Your Gut

When first diagnosed with Type 1 Diabetes, we are told how we will feel. Doctors and nurses come in and tell us what we may experience when we are faced with a low or a high blood sugar, but that’s about it. Mind you most of these medical professionals are NOT Diabetic, which means that they don’t truly know what Diabetes “feels” like. Not only are we not able to fully know what symptoms of T1D feel like until we experience them on our own, but we are never actually mentally prepared for how life is going to feel like from now on, from the good times, to the not so good moments. How we know how Diabetes is exactly like is by simply living with it and experiencing all the possible situations on our own time.

For example, in the hospital, a doctor would typically educate you on low and high symptoms (shakiness, headache, fast heartbeat, etc.), but that doctor doesn’t actually know what it genuinely feels like. When we are faced with our first low blood sugar as a Type 1 Diabetic, it can be a real shocker in the sense that we are not expecting it to feel the way it actually does.

I can remember my very first low when I was essentially “on my own”. I had just gone back to school (6th grade) two weeks after being diagnosed and hadn’t fully understood how important carbohydrates were when on Insulin. I went to lunch that day and didn’t like the bread on the sandwich I was eating, so I decided to not eat the bread and eat the protein inside the sandwich instead, as I thought I was being healthy. Of course, shortly after lunch and having not eaten the carbs I took Insulin for, I had a very bad low. The sweats, shaking, and fast heart beat were so prominent in that low of mine and I needed a friend to walk me to the nurse’s office, where I was given some apple juice to quickly bring my sugar levels back up. Scary, I know, but that was necessary as I then learned why this happened and how to prevent it from happening again.

Trusting your gut is key in living with T1D. You may have just checked your blood sugar minutes before and had a good number. Minutes later, you feel a bit funny but don’t think you could have gone low (or high) in such a short amount of time, but then, you do. You listen to your gut and trust your feelings and, you guessed it, a low. Had you not trusted your own gut, you could have been in for a really bad experience. This can happen in a variety of different situations as a Type 1 Diabetic. You can feel low symptoms when you are actually just fine. You can feel as though your blood sugar is high, when actually, you’re low. Knowing your body and how you feel when certain situations arise can be the thing that saves your life.

Nowadays, we have Continuous Glucose Monitors (CGMs) that tell us what our blood sugars are and where they’re headed, which can give us peace of mind as we go about our day, but can also create anxiety as we can see when we may be going severely low or high at a bad time (work, school, meetings, etc.). Though we can see our blood sugar readings being updated every few minutes, we should not rely on the level of accuracy 100% of the time. Often times, the readings on our CGMs can be way off. That is why we must trust our gut and know our bodies. Every now and then, I may find my CGM readings to be about 100 points off of what my actual blood sugar is, which is extremely dangerous. That just comes to show, always be the one in control of your body and your feelings. You can only depend on yourself to determine how you are truly feeling, and when you do, there is a level of peace in knowing that you were able to catch a bad Diabetic feeling before it caused an emergency.

 So always remember, YOU are in control of how you feel. Not your CGM, not your Doctor, but you.

Live well,

 

Dave

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