My Diagnosis Story: At the age of 15 I was a scrawny, little girl with terrible stomach pains …
Lyfebulb and Arena Pharmaceuticals
A Celebratory Conversation with the Winner of the 2021 Innovation Challenge in IBD At Lyfebulb, we believe …
Lyfebulb Live with IBD Ambassador Grady Stewart: The Key Concepts of Caregiving
I ask Grady which was more important to him – independence or support, given his age upon diagnosis. He definitely chose support, stating, “Support was the pathway to independence for me.”
Paint With Me: Finding a Coping Skill for IBD
Today I talk about how I found what coping skill worked best for me to manage my IBD and my mental health.
“You Don’t Look Disabled”
“Disability is not a bad word. It is not offensive. We should not be afraid of it.”
Disability Makes Me Feel Colorful
“Personally, my disability was the best thing that could have ever happened to me. It is difficult. It is painful. It is exhausting.”
Overcoming Medical Trauma with IBD
“I remember trying to explain that I wasn’t feeling well and then downplayed it for just being tired because I’m used to doing that.”
The call of disease
The call you will likely hear resound when illness comes is a battle cry. Fight. Beat. Kill or be killed. I heard this cry when disease came my way and I yelled back; “War.” I fought through. I muscled on. I battled. I steeled against. Put on a brave face
Black Lives Matter in the IBD Community, Too
In recent weeks, months and years, we have witnessed far too many hate crimes toward our Black brothers and sisters. It is not unknown to us that many Black bodies have been tested upon without fair pain medications, expected to endure tremendous suffering in the name of science.
It’s 2:47 am when I first wake up to rush to the bathroom. As I look in the mirror, under the buzzing glow of the overhead fluorescent lights, I can’t help but feel trapped within my own body. All at once, I feel so confined to my internal reality, yet deep down, I am desperately scratching at the boundaries of my own body.