Tag: chronic disease

The Mysterious Rare Cancer That Took Over My Life

September 30th is Rare Cancer Awareness Day. No one should have to wonder what’s happening to their …


Diabetes tried to take many things away from Karin, but it couldn’t take her ambition.

What does life after a transplant look like for RuPauls Drag Race contestant Willow Pill?

“It tethered me to being alive, to something that had so much joy and life in it,” Willow said. 

Lyfebulb Live with IBD Ambassador Iraklis Kourtis: Going from Patient to Entrepreneur

Kourtis explained that IBD doctors try to tune medication for better outcomes, but intermediary points to connect the loop are missing. He says that there is no actual continuous flow of data.


There has been some controversy around the disease categories IBD and IBS, and I wanted to address it with a commentary from someone who has been in these kind of discussions across the life sciences field.

Reflections on 2021

2021 has been a blur of a year for many. Some say it feels like an extension of 2020, but I tend to disagree.

Why IBDLyfe Means So Much to Me

My story begins in 2011, when my then 13-year-old son first entered the children’s hospital for complications …

The call of disease

The call you will likely hear resound when illness comes is a battle cry. Fight. Beat. Kill or be killed. I heard this cry when disease came my way and I yelled back; “War.” I fought through. I muscled on. I battled. I steeled against. Put on a brave face

Exercising With Chronic Illness

Exercising is a little different for anyone living with a chronic illness. Some workouts trigger flare-ups in autoimmune conditions, while others cause discomfort or pain. Sticking to a regular routine is also difficult due to the many challenges brought about by one’s condition.

How to Stay Emotionally Connected During Social Isolation

In just a matter of days the world turned topsy-turvy. Last week I was in the Rhône Valley visiting vineyards for a work assignment with little access to world news.